Our big guy turned 2 years old today and as a special gift, the docs and nurses at Johns Hopkins set us free last night! Wohoo!
A big thanks to everyone who has helped us these last seven weeks!
We are still in Baltimore at the Children's House beside the hospital for a day or so to be sure Chedner is handling the weaning off the medications that were used to sedate him during traction. He is doing wonderfully and we hope to be cleared tomorrow to leave and get home. We had a small celebration just Ched, me and my daughter Kelly as we passed the time today just hanging out and playing. The wonderful nurses and child life specialist that helped us on CMSC 6 asked us to come back and visit for a minute so they could wish him a happy birthday. There were some fun presents to open and a cake to enjoy as well. The funniest gift he got was a small wagon with a sock monkey inside. It was sort of an inside joke from Mary Devon (child life specialist, see photo below) as Chedner loved to roam the halls of JJH propped up in a red wagon, holding onto his blankie and watching others as he passed by. For our own sanity...well mostly mine...we luckily were able to get out and walk a bit the last 7 days and that helped pass the time for both him and me.
A big thanks to everyone who has helped us these last seven weeks!
3 comments:
Happy Birthday Ched! And what awesome news. Those wagons are such a life saver...we know them well. It's the only way we can get Evan in to see the Doctor at Dupont. Great that Chedner gets to go home. Blessings, Terry
Happy Birthday Chedner! And happy freedom to you too, Fran! I stumbled onto your blog tonight after finding your address and phone number in my wallet today. I have been wondering how you all are doing and how you have survived such a LONG time in Baltimore.
My son is doing well and we saw the urologist on Monday. One tube out and only one tube to go. We started cathing on Monday and all is going well. I thank God that I met you while we were at Hopkins as you helped with my sanity. Having lunch and a long chat at the market was a wonderful experience.
I pray you get to go HOME soon. There is nothing like sleeping in your own bed again!
Love,
Heidi
Awesome! Happy birthday Ched! Spoil that boy, he deserves it for having to put up with all those tubes and bot getting enough spoiling in the hospital! hahaha
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