Thursday, June 12, 2008
This handsome young man is Jorry Rosier. Jorry was born with Down Syndrome. Over 60% of children with Down Syndrome are born with some type of heart defect and Jorry is one of those unfortunate babies. If he was here in the United States, he would have surgery for his Ventricular Septal Defect (VSD). In the US, we no longer deny children born with Down Syndrome the right to have life saving surgeries. That was not the case at one time, not all that long ago. In Haiti there is no one to do this surgery for him though his parents have tried all avenues. Unfortunately we've learned from past experiences, it seems that some doctors here in the US (who would certainly not deny an American child with Down Syndrome the opportunity to have his heart fixed) will actually refuse to do the same surgery for a child with DS from another country like Haiti. I am not sure why that type of logic still exists. and as a mother of a son with Down Syndrome (who needed heart surgery shortly after we adopted him from Venezuela as an infant 13 years ago), I find I am very unsettled and saddened by this situation.
Jorry deserves the opportunity for a long life, just as all children in the world deserve the best we can give them. We are told that all that God creates is good and that God never makes mistakes. I believe that with my whole heart and each time I look at my son, Gabriel, I see his perfection in new and enchanting ways. Gabe reminds me that our measure of perfection is not God's. I've learned that the way the world defines success is most definitely not the same as God has intended for his children. Each day, God's love and joy shines through those mischevious eyes and that glorious smile on my Gabe's face. No child of God should be discriminated against due to a condition like Down Syndrome. I am praying fervently that someone can help find a doctor who would be willing to do the surgery for his little man. His parents are committed and have already gotten a passport for him. Can anyone out there help them?
Posted by Fran at Thursday, June 12, 2008